Retinitis Pigmentosa or Choroideremia? Genetic Testing May Be the Only Way to Know

Retinitis Pigmentosa or Choroideremia? by Mary Hiland When Retinitis Pigmentosa (RP) was the diagnosis for me at age 18 in 1963, I had already been through a battery of tests throughout the preceding 10 years. There was one test, however, that was not even suggested. Genetic testing was considered only for the sake of curiosity, … Continued

Thanksgiving Made Easy for a Single Visually Impaired Hostess

Most Interesting Thanksgiving Memory No smoking and no football. Those were the ground rules I had laid down for my Thanksgiving dinner in 1992. Everybody has a favorite Thanksgiving memory and a worst Thanksgiving memory, but here’s my most interesting one, and well, maybe the most fun. Newly divorced, I decided to host a Thanksgiving … Continued

Grandma’s Glory: Tips for a Successful Visit from Your Grandchildren

Editor’s Note: In honor of Grandparent’s Day (Sunday, September 10th), Mary Hiland, a VisionAware peer advisor with retinitis pigmentosa, has written a delightful post about a recent visit from her grandchildren. Read and enjoy! Grandma’s Glory By Mary Hiland My daughter Kara and her family, husband and three children, were just here for a few … Continued

Preventing Falls and Accidents As an Individual with Vision Loss

Editor’s Note: As individuals with vision loss, navigating hazards at home can be tricky, dangerous, and take some time getting used to. Because June is National Home Safety Month, the VisionAware peer advisors are sharing stories about their in-home accidents, reasons why accidents happen to individuals living with visual impairment, and how they can be … Continued

A Grandma’s Thoughts

Editor’s note: This post is part of the Blind Parenting series created to provide visually impaired parents and grandparents with first-hand accounts of how you can raise a child safely and independently. In today’s post, Mary Hiland shares the importance of teaching children how to interact with individuals who have low vision and how to … Continued