Josefina Irina Miller, Age 76, Retinitis Pigmentosa
Return to Josefina Irina Miller video page.
NARRATOR: Gray-haired woman in easy chair.
JOSEFINA: What I thought was that I had nothing to look forward to. My children were gone. They were grown and married. My, my… I had lost my husband. I was living alone. I was told that I shouldn’t drive.
Turning it Around
JOSEFINA: I, um… eventually joined a support group, which was really the turning point in my life.
NARRATOR: Josefina sits with a group at a table.
JOSEFINA: I was able to meet other people with similar problems, and to also get information from them, and I found resources available through them. I have had wonderful experiences. I have met… made many friends. I have, uh… learned that there are good people out there that are willing to help others.
Uncovering a Hidden Talent
NARRATOR: Josefina holds a painting of a girl in a red dress.
JOSEFINA: I love art, and I love, uh… beautiful things, but I had never painted in my life. I had never taken a brush in my life. So when we started this class, our instructor, who had macular degeneration, developed a certain way to help us start a painting and then continue with it. I can’t draw a whole big picture. I have to do it sections at a time because I only have… I have to focus into that one little area. So I go from one little area to the next. I cannot believe that I accomplished anything like this, because, first of all, I have never had art before, and secondly, I have partial vision. And to see something like this that I have created, I feel like I have really accomplished a lot.
NARRATOR: Josefina points to her pin, that says “I have low vision.”
JOSEFINA: With this pin, sometimes they ask, what is low vision? What is it that you have? Why do you wear this pin? And so I explain it to them. Most of the time, believe it or not, when you start talking to one person about having a visual impairment, they’ll always come up with, I have an uncle, or my grandfather was blind, or my uncle is blind, but he doesn’t want to go anywhere. He just wants to stay home—he’s afraid. So then I can start giving information as to how to convince that… that person to seek help.
The World Traveler
NARRATOR: Pictures of Josefina at various European locations.
JOSEFINA: I’ve gone to France. I’ve gone to Lourdes. I’ve gone to Spain several times. And it’s just been wonderful. Then five years ago, I went to Italy for the first time in my life, and I don’t know why I had never been there before, because it’s the most beautiful country. I don’t know when I’ll ever—if I’ll ever see it again, because this is a progressive disease. And I want to see as much as I can. I want to learn as much as I can.