Empowering Doctors and Patients: Taking Charge of Diabetes
What I See As A Retinal SurgeonWhat else do we see here? As a retinal surgeon specializing in diabetic eye care, I see plenty. I see patients who do everything they can and for the most part they do very well. Diabetes is one of those situations where either you play hardball with it or it plays hardball with you. If the patient does take control though, if we all do it together, then the disease can’t prevail. I also see patients who hope that if they ignore the diabetes hard enough, it will go away. The trouble is, that is the only guaranteed way to lose the fight. It isn’t until this becomes tragically clear that patients finally decide to fight back, and over and over I see the heartbreak of trying to gain back vision, independence, even life against the ravages of damage already done. I see a full range of care in the community. For the most part, I have the honor of working with dedicated, caring physicians at many levels. I see great, selfless educators and nurse practitioners. I also see business leaders who share their leadership expertise and financial resources to build facilities and programs. Unfortunately, there are also caregivers who see patients with diabetes as a financial opportunity. It is very easy to assign a diagnosis and perform a treatment without any pathology being present and without any opportunity for discovery. Amazingly, we often see such people admired for their “profitability” by administrators who don’t understand the truth. Predators like this are sometimes rewarded instead of punished, and that is something that hurts patients, dishonors the real caregivers, and tarnishes the credibility of program leaders. So, what do we need? More research? Sure, but we can do so much better with the things we already know. More doctors? Sure, but we also have so many other resources these days. More money? More facilities? Rewarding profits over integrity?
We Need Empowered Patients and Here’s HowWhat we need most is patients empowered with the knowledge that they can win, and with the information they need to do so. Eye patients need to know that:
- The eye really is a window into the body, and what’s going on there is a reflection of what’s happening in the kidney, the nerves, the brain, the GI tract … everywhere.
- There is a ten-fold lower risk of severe vision loss, kidney failure, and other complications with a Hemoglobin A1c of 6 compared to a level of 10. The A1c is a test that can diagnose both diabetes and pre-diabetes.
- Current monitoring and treatments are vastly more efficient and easier to do that in the past. Current diabetes care is not what you saw your elders suffer through.
- If you are told that you need eye lasers or other surgery, you probably, but not necessarily, have visual symptoms. You should be shown the leaky spots on the pictures of the back of your eyes. If you aren’t shown this, you should get another opinion and discuss the disparity with your primary medical doctor.
- There are many myths from the past, one of which is that we cannot gain back any vision that is lost. That is absolutely untrue! With current laser techniques, medicines, and other interventions, we can often make dramatic improvements in vision
- There is a lot new out there for eye care. There are new legitimate things and there are lots and lots of scams. Your doctor should take the time to discuss these with you and be your advocate to separate the wheat from the chaff. I probably spend as much time educating my patients as actually providing testing or care.