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Category: Retinitis Pigmentosa

Understanding Low Vision Care and Low Vision Devices: Part 2 in a Series on Low Vision and Low Vision Services by Bryan Gerritsen, CLVT

From: VisionAware Blog
Categories: Assistive Technology , Diabetes and diabetic retinopathy , Glaucoma , Low Vision , Macular Degeneration , Personal Reflections , Reading , Retinitis Pigmentosa , Stargardt Disease
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Guest blogger Bryan Gerritsen is a certified low vision therapist (CLVT) and owner of Low Vision Rehabilitation Services, providing low vision services throughout Utah. He is also the author of An Overview of Low Vision Devices, What are Low Vision Optical Devices?, Helpful Non-Optical Devices for Low Vision, Electronic Magnifiers and Magnifying Systems, and the … Continued

There Is Hope; There Is Help: Part 1 in a Series on Low Vision and Low Vision Services by Bryan Gerritsen, CLVT

From: VisionAware Blog
Categories: Assistive Technology , Cataracts , Diabetes and diabetic retinopathy , Environmental assessment and modification , Glaucoma , Helpful Products , Home modification , Low Vision , Macular Degeneration , Personal Reflections , Reading , Retinitis Pigmentosa , Stargardt Disease , Stroke or Brain Trauma , Technology
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Guest blogger Bryan Gerritsen is a certified low vision therapist (CLVT) and owner of Low Vision Rehabilitation Services, providing low vision services throughout Utah. He is also the author of An Overview of Low Vision Devices, What are Low Vision Optical Devices?, Helpful Non-Optical Devices for Low Vision, Electronic Magnifiers and Magnifying Systems, and the … Continued

A Mountaintop View of the World in Spring

From: Visually Impaired: Now What?
Categories: Personal Reflections , Retinitis Pigmentosa , Social Life and Recreation
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As spring moves swiftly into her delightful season of wild flowers and longer sunny days, I am reminded how touch allows me to see as my world goes out of focus with Retinitis Pigmentosa (RP). But my desire to see through blind eyes is kept alive by traveling to foreign shores…or in this case, a … Continued

Meet Author Irv Arons and Learn More About Gene Therapy and Gene Editing for Eye Disease

From: VisionAware Blog
Categories: Clinical Trials , Gene Therapy , Low Vision , Macular Degeneration , Personal Reflections , Retinitis Pigmentosa , Stargardt Disease
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Irv Arons is the creator of – and driving force behind – Irv Arons’ Journal, an online compendium of the latest information on ophthalmics, medical lasers, clinical trials, developments in stem cell therapy and gene therapy, and emerging drug therapies and treatments for retinal diseases, including age-related macular degeneration. Until his retirement in 2005, Irv … Continued

Meet Dr. Gislin Dagnelie and Dr. Duane Geruschat: Pioneers in the Study of Restored and Prosthetic Vision

From: VisionAware Blog
Categories: Assistive Technology , Clinical Trials , Environmental assessment and modification , Getting Around , Low Vision , Medical Updates , Orientation and Mobility , Personal Reflections , Retinitis Pigmentosa , Technology
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Gislin Dagnelie, Ph.D., is an Associate Professor of Ophthalmology in the Johns Hopkins University School of Medicine and the associate director of the Lions Vision Research and Rehabilitation Center, a division of the Johns Hopkins Wilmer Eye Institute. His work over the last 20 years has been supported by grants from the National Institutes of … Continued

New Research Explained: Restoring Vision Following Long-Term Blindness: Prosthetic Vision and Considerations for Rehabilitation

From: VisionAware Blog
Categories: Clinical Trials , Diabetes and diabetic retinopathy , Getting Around , Glaucoma , Low Vision , Macular Degeneration , Medical Updates , Orientation and Mobility , Retinitis Pigmentosa , Stroke or Brain Trauma , Support Groups , Technology
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During the past several years, there has been much “buzz” in the popular press about the capabilities of the so-called “bionic” eye, described variously as “miraculous,” “restoring sight,” and “letting me see again.” At VisionAware, we have followed the development of “bionic” or “prosthetic” vision closely, avoiding hyperbole and striving to report factual, research-based information … Continued

Visit Guggenheim New York Without Having to Get out of Your PJ’s

From: Visually Impaired: Now What?
Categories: Holidays , Retinitis Pigmentosa , Social Life and Recreation
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Take a Tour With a Difference For those of you who enjoy wandering through art galleries, going on audio described tours and keeping in touch with the art world, guess what you can do over the holiday season without even having to get out of your comfy warm PJ’s? Take an online audio described tour … Continued

Our Readers Want to Know: Why Am I Having Visual Hallucinations Along with My Vision Loss?

From: VisionAware Blog
Categories: Cataracts , Diabetes and diabetic retinopathy , Glaucoma , Low Vision , Macular Degeneration , Readers Want to Know , Retinitis Pigmentosa
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Editor’s note: One of the many benefits associated with an online information center and website, such as VisionAware, is the ability to track readers’ search terms [i.e., information readers are seeking as they search the Internet]. Since the earliest days of VisionAware.org, and more so during the past year, the following questions appear consistently within … Continued

AFB Press Releases New Edition of Making Life More Livable: Simple Adaptations for Living at Home after Vision Loss

From: VisionAware Blog
Categories: Aging , Assistive Technology , Books , Caregiving , Cataracts , Diabetes and diabetic retinopathy , Environmental assessment and modification , Getting Around , Glaucoma , Helpful Products , Home modification , In the News , Low Vision , Macular Degeneration , Orientation and Mobility , Personal Reflections , Reading , Retinitis Pigmentosa , Social Life and Recreation , Stroke or Brain Trauma , Support Groups
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by Mary D’Apice, VisionAware Contributing Writer An interview with Maureen A. Duffy, CVRT, Author Making Life More Livable Agencies that provide services to people who are blind or visually impaired offer vision rehabilitation to the 5.3 million Americans over 65 with age-related vision loss. But for those who are not quite ready to enlist the … Continued

New Retinitis Pigmentosa Research: Uncovering the Mechanism Underlying Photoreceptor Cell Death

From: VisionAware Blog
Categories: Clinical Trials , In the News , Low Vision , Medical Updates , Retinitis Pigmentosa
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Researchers from the National Eye Institute and New York University have published new research that implicates the normally beneficial and protective “trash-collecting” central nervous system cells in the accelerated cell death associated with retinitis pigmentosa. Please note that this research is in its earliest stages and has been conducted thus far only with laboratory mice. … Continued